Alexandra's disease progression

On June 12, 2005 I received the progression of Alexandra's illness, to which she gave her consent on June 14, 2005 to make it available to others online on my site. A big thank you for this goes to Alexandra. Here is the email with the course of the disease:

Hello Orkana,

Here is a brief description of my story of suffering: In September 1998 I had pain in my right hand for the first time. As with many others, the initial diagnosis was tendonitis. I was given a bandage, ointments, and other good advice. Despite the sick leave and immobilization of the hand, the pain did not decrease. After about 2 months it got a little better and the pain was bearable. In 2001 I was in such severe pain again that I was referred to a surgeon. He also guessed overload and tendonitis.

This continued until May 2004. At that point I was eight months pregnant. While doing minor chores in our garden, I slipped and supported myself with my right hand. At first we thought the hand was broken because I couldn't move it. For this reason we drove to the Erfurt Clinic. After a long back and forth, the hand was finally x-rayed with my consent.

The first diagnosis was that the hand was probably broken. But you couldn't see it that exactly on the X-ray. In the course of the night I got severe pain, so we drove to the clinic again. Fortunately, there was a capable surgeon (Dr Grosse-Legge) who, after looking at the x-ray, diagnosed lunar bone death. The problem was that an MRI could not be done during pregnancy and an exact diagnosis (which stage) could only be made after the pregnancy. This then happened in October and stage 3 moonbone death was found. Since the mobility of my hand tended to zero in the meantime, physiotherapy was prescribed until February 2005.

At the same time, we asked you on your website and at the State Medical Association in Thuringia. Here we were given the recommendation to visit the Hufelandklinik in Bad Langensalza, as the best surgeons for hand surgery in Thuringia are there. Prof. Henke and his team, first and foremost senior physician Mohr, then set the surgery date as March 30th.

My moon bone was completely removed and a chip was taken out of the iliac crest and inserted in place of the moon bone. Until June 7th, 2005 I had plaster of paris, on June 8th, 2005 the wires were removed and from June 13th. I start with occupational therapy.

Conclusion: At the moment I am quite satisfied with the process, as I am free of pain and with the mobility of the wrist I will hopefully make progress now. Incidentally, the operation was performed under general anesthesia. I can only advise other people affected to find out more in advance and always keep your head up. I can recommend the Hufelandklinik because the treatment and support were very good. I had and still have great support in my husband who looked after our 2 small children and who always encouraged me.

I will report on the course of the therapy and the later possible restrictions at a later date.

Bye-bye says Alexandra